Recognizing Lipedema: Diagnosis, Lived Experience, and Body Autonomy in Women's Health

Recognizing lipedema requires attention to people’s experiences and the barriers they encounter in seeking care. Weight-focused advice, anti-fat bias, and assumptions about whose bodies develop lipedema can shape the path to diagnosis and the support people receive.

In this session, Brena Jean will bring lived experience into discussions of lipedema recognition, treatment, and bodily autonomy. She will lead us through the exploration of the effects of delayed or missed diagnosis and consider what people living with lipedema need from healthcare providers and advocacy communities.

The session will also examine Black women’s representation in current lipedema research and its implications for equitable care. Participants will consider how the experiences reflected in research influence clinical understanding and whose needs may remain overlooked.

This event will be recorded, and registrants will have access to the recording for 30 days, after which access will be limited to ASDAH members.

We're excited for this conversation that will be grounded in lived experience and the right to care that believes and respects the person behind the diagnosis.

1.5 CPEUs available (pending approval).